2014 update!!!

We are in our last 6 months of treatment… Thank you for your continued prayers and encouragement. We have accumulated a wealth of information that we will be sharing and compiling into print. Try http://www.amazon.com/Normal-Broken-What-that-dont/dp/0615983448/ref=sr_1_1?s=books&ie=UTF8&qid=1395083356&sr=1-1&keywords=normal+is+broken  it addresses several experiences.

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When you see a child in public and they have lost their hair, look pale and frail and in a wheel chair…you think this child is suffering from cancer…more than likely not…it is a good possibility they are in remission … what you see is
the side effects of pediatric protocol. We are losing friends and financial support over this quest. Some have said she is in remission why would we need the support? First, we do not need your financial support to pay for medical bills incurred by the hospital, but we sincerely thank you for your prayers and gifts! Selah does not need your financial efforts for having cancer. She had been healed by the grace of GOD, long before the doctors declared remission! We have a mandatory 2 1/2 year protocol the C.O.G. makes children go through. This week Selah starts a new phase of therapy that requires her to have chemicals put into her veins that the label warns against potentially fatal side effects. The chemical destroys abnormal cell production known as “blasts”. Selah’s Blast count dropped to 0 actually before the official diagnosis was processed. If there are no blasts, i do not know why she needs a chemical that stops blast formation when she has none? This is known as “PROTOCOL”. I am not mad about what others have yet to realize. The funding we are requesting help with is multi-facetted. First, to help us dedicate the time needed to prepare for possibly a 2 year interruption of my current professional position. I am finding it impossible to keep appointments and dedicate the mindset required. I have been preparing for this transition to set up my office from home and find a way to make presentations that will market my services appropriately. Second, we are using an alternative supplemental program to be integrated with her existing therapy. None of this is a covered expense and will continual for several years, if not life long? The program has been approved 100% by the hematology/oncology and pharmaceutical teams. In fact, it was suggested that my research was thorough enough to share with others of similar concerns under treatment! We anticipate an additional $10,000 year expense for this alone. Travel, home changes, and Selah’s personal needs through this protocol will also be increased. Thirdly, we are trying to help families with spiritual, informational, and critical family support through the Selah Says Society. We hope to establish a website that has interaction to share prayer requests, statistical results, miraculous results, and memorials. We hope to start a sub-entity designed for special needs families, called “Butterfly Junction”. A barrier free preserve and interaction center along with a performing arts and artistic expression facility; a place to experiment, explore, express, and exhilarate! Lastly, can we find a way to make a better mousetrap? If we can help generate some research dollars to the grotesquely underfunded pediatric cancer platform, we would be so blessed to participate. It is why we promote the few events, set out donation canisters, and offer healthy coffee. (www.mrbluesky.organogold.com ) Thank you for your much needed continued support over the next few years and immediate needs. Please share, please pray, please participate?!? We could use your help to manage canisters and repost events and share the coffee fundraising site. Again, thank you so much for all that has been done and is yet in planning stages.

Click this link www.mrbluesky.organogold.com

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Great News Sept 24th Update

Some great news…. Selah’s Alternative Suplemental Program has a 100% approval from her doctors! They even told me our research was thourough and beneficial and they planned on sharing parts of the program with other families. We do not have to go back for anything until October 4th! and moving to a 10 day cycle instead of every week! Thank God for direction, His Word of promise, healing, and truth that surpasses the understanding of man for us to investigate and search for like treasures! Thank you all for your continued prayers, freindship, and support. We know there is yet a long road ahead…but this was a major answer to our prayers….to better the bridge!

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Sept 6 update

The word REMISSION came out of the doctors mouth today! We also went 4 hrs of rounds with the protocol that reads …. may cause other cancers, siezures, liver damage, bladder damage, spleen damage, kidney damage…vomiting, fevers, further hospitalization, blindness, or death…this only happens in 20% of the cases so… against our will unless we wanted court action and child protective service
called we had to sign the order to continue protocol platform treatment. Eventhough out of the doctors mouth… ” there is no detectible traces of leukemia in your daughters blood, bone marrow , or spinal fluids.” There is no other treatment plan acceptable in North America & Australia because the C.O.G. says so. Oh yes…by the way… the medical bills are payed for if we stay within this protocol…if we do not …niether are they! Can anyone say the word…”Railroad”? I know my medical friends say there is safety in this protocol and an 80% cure rate. My spiritual friends know a doctor with a 100% trust factor! It is not death we fear…it is the trial and error of mans fears that frustrate us to be forced within. We were told today…” if the plan protocol doesnt work and it looks like we cant help your daughter ..you are then free and unbounded by law to try any other plan you like” Thanks! after you almost kill our daughter..and sign here incase we do… you now can try prayer, dietary and natural pathic healing, and an incense or two. Any lawyers out there care to take this on? It should be a matter of choice at this point…she is in remission. Maybe an activist with a picket or two? Maybe a tv interview? We really dont want the battle ahead… so we pray that this battle belongs to the LORD! That the challenge of HIS promises,healing, and miracles will be fought by him, and our daughters safety we place in the hands of a merciful Creator that says his kingdom is our kingdom. Luke 12:22-34 with emphasis on verse 32!

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Picture video

FOR LIL' SELAH…..WE PRAY

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Today we are he…

Today we are heading back to the hospital , there are some test and proceedures that have to be done. bone marrow biopsy, lumbar puncture,last IT chemo of induction. The thoughts make my stomach flip and my knuckles white as I hold a shield and sword for my daughter. whatsoever we bind on earth shall be bound in heaven…will you speak outloud today , ‘Dear gracious father , we bind all the leukemia that was seen in Selah’s blood and body , and that you destroy this uninvited invasion of her innocence. we stand and speak on the promise of your word today that this will be done as your word promises, this is not our demands, just our faith in you spoke to us, we agree and believe in the name of JESUS,as it was said, as it was written, let it be done!’ – Jeff Jones – Daddy

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UPDATE ON SELAH:…

She is sure glad to be home but has a really hard time walking right now …her legs are hurting from all the chemo and drugs they have given to her and never givin her phycial therepy..lord pls help her swelling to go down too…she has a hard time not wanting to STOP eating all day long…thx you all for your continued love and prayers…♥ xoxo – Brenda Jones

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